Sisters

Today my sister goes home. So I am thinking of stealing her passport? That would be not too bad?

treatment appointments

Next few days of treatment planning. Bring it on:)

Wish my sister didn't have to go soon. She is funny, makes me laugh, so hard that bubbles come out of my nose, and gives me hope.,
xxx

almost up to two finger typing:)

better at writing

it is  like starting from pre-school:)
love to my friends XX

I am still excellent

I am writing this blog on Katy's behalf because Katy cannot type yet (Annie - Katy's sister over from the uk)

Had operation last Friday where the excellent surgeon cut out 99% of the grade 4 tumour.  I was home the next day - less tham 24 hours after having the op!!  Karl and I are so grateful to have such wonderful friends who stayed with Karl at the hospital all day.  My speech isn't too great but is improving every day, as are my facial symptoms.  The tumour will remain at grade 4 - that will not change.  But - I will fight like fuck! I have appointments next week to discuss the next stage of my treatment which will be chemo and radiotherapy.  I will also have occupational therapy, physical therapy and speech therapy.  As soon as I can I will be riding again.  In another 5 weeks - don't tell Karl!!

We would like to say a huge thank you to all our friends who have helped in all different ways - we could not do this without you.

I am also over the moon to have my awesome sister with me who has flown over from England to make me laugh.  (Ok, that was Annie writing that but I think my speech therapy methods are working - contact me for more information on this!!)

GBM

Stage 4. Op tomorrow

All gone pear shaped as they say

First of all i need to say a big thank you to a close friend for insisting I follow up on the increase on my symptoms.

Basically they found a thing in the middle of the tumor that was not there 3 weeks ago. Treatment is not starting tomorrow. Have more MRI and wanding stuff, my surgeon gets off a plane 2morrow and may have emergency op.   

Shit. 

To top it off Astrid got taken  to ER with broken finger. No harm done and she loved the attention.:)

At least i got to ride wonderful Charlie today.

Appointments

So I finally got a call back. Tomorrow I go in to make sure everything is in the right place to zap and then start radiation Thursday. Along with chemo at the same time.  Things are moving on.

Disney and frustration ( not at the same time)

Disney was a real treat, the children loved it. It was unusually hot which was a drag but nothing that a swim in the afternoon couldn't fix. We met up with a very good friend of Astrid's for a Princess lunch, it was a complete surprise for both of them was very sweet. Alexander was not impressed.

Now for the frustrating part. I have not heard  back from Barrow about the radiation and have started to have other symptoms. My speech is poor and fine motor control in the right side of my body is deteriorating.

Tonight I was reading Curious George to Astrid and she found it was very funny that that I couldn't say the word "puzzle". You not even want to know mess I made of "Flagstaff: