Wednesday, December 28, 2011

astereognosis - Who Cares?

astereognosis - Stereognosis is the ability to identify objects that are placed in the hand when the eyes are closed. The patient is given common objects and asked to identify them without looking at them. The inability to do this called astereognosis and indicates parietal lobe dysfunction.

This (apart from some work on my fine motor control) is apparently the extent of my problem with my right hand. I frankly don't care. Who reaches into a draw full of knives with looking first? Who keeps their keys in with their comb and doesn't look for them first? I certainly don't and can look now if I have to, or use my left left hand.

I can write, type, cook, ride a horse, knit, tie my shoes laces, run, etc. So this seems a non-issue to me:)

My speech, memory, attention etc. needs work, but hey with a 5 year old girl and an 8 year old boy they did anyway.

If this is the extent of it - yippee!

Thursday, December 8, 2011

Last Radiation Appointment - YAY

It was my last radiation appointment yesterday which was a relief. I cannot believe that it has been 30 times. I had a standing ovation from my fellow waiting room friends which was bitter sweet. I also got to hug the rather attractive techs that have I been dealing with and take my mask home:)

I had the meeting with the Dr. after. He said that he though he thinks he are going well ,he reminded me that I will never return to how I was before the surgery. Everything they had to remove would not come back. I know that, but it was hard to be reminded of. I think that I am going to choose ignore him on this one. He then reminded that I have also ignored him on a few things like jogging in the dark. I think that he was joking. When else would I have time to do it?? He wants to hear from me immediately if I feel things are up and then an MRI will be scheduled.

I woke up last night in a panic thinking that I hadn't taken the chemo, then I remembered that it stops the last day before radiation. Maybe the Doc. is right:)

Today is going to be another long day.  The Chemo lady now takes over and that is the first appointment. She will again lower the decadron dose today as she wants me off ASAP. She and will also schedule the MRIs from here. I found out that the high dose a Temador will most likely start after the first MRI in the New Year.

Next my Avastin infusion which is easy. Next Ot and speech therapy ( 2.5 hours back to back) which is hard work but the results are worth it.

Maybe  an hour to relax then we are going to the Holiday Lights at the local train park.

Sunday, December 4, 2011

Update Dec. 4th

It has  been a while since my last post. Things have been going well.

I cannnot believe that my last day of the radiation therapy ends this Wednesday. That will be the total of 30 sessions over.

Much as I love the techs there I cannnot wait to see that back of them. The last appointment with the radiation Doc. will be the same day.

Speech and OT continues and I am scheduled through the end of the year. I will extend as long as the insurance company allows. They are alreadly asking questions about the cost of the Avastin whichs seems to be around $15,000 a shot and is not considered "chemo".

The double dose of regular chemo I am assuming starts right away. I will find out Thursday. The MRI will be planned for around the holidays to allow things to "settle down". We will ask for a New Year one.

We have fun family things like the membership night and the Train Lights, Ornament Exchange at the Barn, Polar Express. etc.Karl's birthday (yikes better get shopping - Amazon is my friend )

My Mum leaves Monday and I am seriously considering the passport thing this time around as I am more with it than when Anna left:)

More from Brain Tumor Land later.