The MRI was 8:30 this morning and then we saw the neuro-onco at 11.
Overall very good:
Tumor reduced in size
Less enhancement under the contrast agent (gadolinium)
"Small" area of gliosis in original GBM site from radiation, no flair. Too small to do anything, may just go. Not great news but to be expected given the circumstances.
Neuro-onco very happy that not only is the tumor stable (no growth), but has again shrunk. This tumor will not go away, but the idea is to keep it stable. i.e. no growth.
Start next round of Temador tonight for 5 days.
Avastin infusion fine, repeat in two week.
Will reduce the steroids by .5 mg after this round of chemo ends.
Next MRI in 2 months unless anything changes.
Feel very happy about all.
Riding Champ tomorrow:)
Wednesday, February 29, 2012
Wednesday, February 15, 2012
steroids etc.
I had a dreadful chemo week (1 Feb). I originally put it down to not getting enough rest before the chemo but I literally slept Sat - Tues. I asked Karl to call the neuro - onco who said it was most likely the drop in decadron (4 - 2 ). She immediately put me back up and I have been feeling a little better.
It was very scary, sleeping all of the time, talking going downhill, stumbling. All because of the decadron dosage reduction. I was annoyed that they did the reduced decadron at the same time as the Temodar as it made it hard to tell what was going on.
I am slowing recovering, but still very tired and scared. I would rather stay at 4mg and take any side effects than go though that. MRI in two weeks which I am looking forward to (kind of)
The next round of Temodar (same day as the MRI Feb 29th) will be at a dose increased from 250mg to 300mg. Then 2 months after that will it be put up to 350mg. I had no idea that they did that. I bet I feel that more than my current dosage.
I had the Avastin infusion today which is always "fun", the nurses really are the best.
I only got to do one day of the horse camp and yesterday was the first time I have got on a horse since then. I am riding again tomorrow, always the best.
Speech therapy is great as usual. Even when I show up tired and not very motivated she always manages to get the best out of me, keeping my results on target without it seeming like work. What a great teacher.
To end on a good note - riding at 10am and then speech at 1:45.
It was very scary, sleeping all of the time, talking going downhill, stumbling. All because of the decadron dosage reduction. I was annoyed that they did the reduced decadron at the same time as the Temodar as it made it hard to tell what was going on.
I am slowing recovering, but still very tired and scared. I would rather stay at 4mg and take any side effects than go though that. MRI in two weeks which I am looking forward to (kind of)
The next round of Temodar (same day as the MRI Feb 29th) will be at a dose increased from 250mg to 300mg. Then 2 months after that will it be put up to 350mg. I had no idea that they did that. I bet I feel that more than my current dosage.
I had the Avastin infusion today which is always "fun", the nurses really are the best.
I only got to do one day of the horse camp and yesterday was the first time I have got on a horse since then. I am riding again tomorrow, always the best.
Speech therapy is great as usual. Even when I show up tired and not very motivated she always manages to get the best out of me, keeping my results on target without it seeming like work. What a great teacher.
To end on a good note - riding at 10am and then speech at 1:45.
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