I am thankful for many things and here are a few:
My family at home, Karl, Astrid, Alexander for their love and care.
My family in England that I miss so much. I Mum is here right now and the pleasure and relief is immense.
My lovely sister, such a bright light and so funny.
My Dad is also coming soon, and the chance to spend time with him will be good.
I am thankful for my dear friends, their support and belief in me. It means so much.
Also to the network of support that my family and i have received from so many people: the school, the barn and from too many other sources to count.
All of these things are helping to give me the strength, hope, and courage to fight this.Thank you.
Grade IV Glioblastoma multiforme (GBM)Oct. 2011. Changed from low grade glioma in space of two planning MRIs two weeks apart. Emergency op. on 7th Oct. 2011.
Thursday, November 24, 2011
Monday, November 14, 2011
Hair Loss
I expected hair loss around this time. What I did not expect was for my hair to form overnight into tight dreadlocks first. I know is it the loose hair twisting around the remaining but is was an unexpected development:)
Wednesday, November 9, 2011
Busy Busy
I had a good (?) day of appointments today.
Chemo lady was good and has decided to start the IV Avastin at the early point it the radio therapy which makes 23 November.
We could that done this the 22 but that is Astrid's Thank Giving Play. Cannot skip that:)
The IV will take about 90 mins I think every two weeks. She also gave me an SSRI script. as I find as hard to stop the tears andIcannot do that the children.
Radiotion was as usual except that Karl got to take some photos of me in my fancy mask. The Doc. was actually very nice today to if prove me wrong.
Had a nice lunch with Karl. Dont get to see him much as he is working so much.
Tomorrow I start speach and OT therapy. The eval. yesterday was long and frustrating as I realize have I lost so much.
The speach etc. is most interesting I they will be looking at changes, as well as progress, as a means of spotting growth or changes on the tumor. This part hadn't ocurred to me. Anything to help.
Mum coming tomorrow, that is wonderful.
Chemo lady was good and has decided to start the IV Avastin at the early point it the radio therapy which makes 23 November.
We could that done this the 22 but that is Astrid's Thank Giving Play. Cannot skip that:)
The IV will take about 90 mins I think every two weeks. She also gave me an SSRI script. as I find as hard to stop the tears andIcannot do that the children.
Radiotion was as usual except that Karl got to take some photos of me in my fancy mask. The Doc. was actually very nice today to if prove me wrong.
Had a nice lunch with Karl. Dont get to see him much as he is working so much.
Tomorrow I start speach and OT therapy. The eval. yesterday was long and frustrating as I realize have I lost so much.
The speach etc. is most interesting I they will be looking at changes, as well as progress, as a means of spotting growth or changes on the tumor. This part hadn't ocurred to me. Anything to help.
Mum coming tomorrow, that is wonderful.
Tuesday, November 8, 2011
Scared of the Docs
I sure that this the wrong attitude, but at this point I am scared of the doctors.
I hear nothing but bad news. I am sure that they are trying to not give me false hope, but come on
PLEASE!
This not include the Chemo lady or the surgeon but the radio dr.
The radio tech are wonderful. But soon I hear mention of a the Dr. I start to panic. In fact in last hearing a message the doc. was on his was I literally ran after the radio. They called Karl to ask what up
he just said that I not know.
9 day of radio and chemo together. I am feeling OK.
I hear nothing but bad news. I am sure that they are trying to not give me false hope, but come on
PLEASE!
This not include the Chemo lady or the surgeon but the radio dr.
The radio tech are wonderful. But soon I hear mention of a the Dr. I start to panic. In fact in last hearing a message the doc. was on his was I literally ran after the radio. They called Karl to ask what up
he just said that I not know.
9 day of radio and chemo together. I am feeling OK.
Sunday, November 6, 2011
Beer for Brains
So funny, Karl got to combine his most special things,beer and food, with raising money for our new fundraising thing.
http://thebeerforbrainsfoundation.org/
He even got me a t-shirt:)
love you Karl xx
http://thebeerforbrainsfoundation.org/
He even got me a t-shirt:)
love you Karl xx
Wednesday, November 2, 2011
First round done
1 weeks done of rad. and chemo
6 more to go
two years of the chem
Decadron up due swelling back up
Still cannot control that what coming is of my mouth.
Dog walking helps.
6 more to go
two years of the chem
Still cannot control that what coming is of my mouth.
Dog walking helps.
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