Grade IV Glioblastoma multiforme (GBM)Oct. 2011. Changed from low grade glioma in space of two planning MRIs two weeks apart. Emergency op. on 7th Oct. 2011.
Monday, November 14, 2011
Hair Loss
I expected hair loss around this time. What I did not expect was for my hair to form overnight into tight dreadlocks first. I know is it the loose hair twisting around the remaining but is was an unexpected development:)
Perhaps put on a little reggae, have a party with your kids and call it intentional? :) Rollercoaster of surprises needs to slow down for you! Hope it does soon.
Wow Katy! Perfect sentences and perfect spelling. Sorry about your hair but if that is what it takes to nuke those bad cells then I guess you have to get some cool scarves. I am so excited about your command of language. Keep up the good work and fight, fight, fight. Charlie and Buck will not be paying any attention to your hair, nor will any of your human friends at the barn. Amy D.
You amaze me Katy and are an inspiration to me. I pray for you daily and so does our church believing for healing. You are an amazing woman, mother and friend. We love you! The Mealeygang
Thank you, my chemo lady has been in looking into this from the conference 2 week ago. I have my brain slices and will be ready to go if this start getting results, and will make am not included as a a currently in therapry person. apparently the research lady had packed audiances at the confernces but found "one immunise reponse in only person" this is one of our hopes. Thank you for passing lasted info. I will be raising again.
Perhaps put on a little reggae, have a party with your kids and call it intentional? :) Rollercoaster of surprises needs to slow down for you! Hope it does soon.
ReplyDeleteMaybe Karl likes the "island" look?
ReplyDeleteWow Katy! Perfect sentences and perfect spelling. Sorry about your hair but if that is what it takes to nuke those bad cells then I guess you have to get some cool scarves. I am so excited about your command of language. Keep up the good work and fight, fight, fight. Charlie and Buck will not be paying any attention to your hair, nor will any of your human friends at the barn. Amy D.
ReplyDeleteYou amaze me Katy and are an inspiration to me. I pray for you daily and so does our church believing for healing. You are an amazing woman, mother and friend. We love you! The Mealeygang
ReplyDeletehttp://www.cancercompass.com/message-board/message/all,62926,0.htm?mid=448944#448944&c=NL20111116
ReplyDeleteKaty - it might be worth looking at this message. It is about vaccine trials for GBM
this might be a better site -
ReplyDeletehttp://finance.yahoo.com/news/Northwest-Bio-Present-Society-prnews-1727123260.html?x=0&l=1
Thank you, my chemo lady has been in looking into this from the conference 2 week ago. I have my brain slices and will be ready to go if this start getting results, and will make am not included as a a currently in therapry person. apparently the research lady had packed audiances at the confernces but found "one immunise reponse in only person" this is one of our hopes.
ReplyDeleteThank you for passing lasted info. I will be raising again.